Bradley’s visits to Cincinnati Children’s Hospital went well this time. The doctors are so amazed by his muscle strength and ability to walk at the age of 16. He is getting tighter in his hands and hamstrings, so he will have to start the hand splints again.
They are concerned about his ongoing right foot pain. They gave us some suggestions to take to the local orthotist. They also suggested we get a scooter from the MDA loan closet, if they have one, just to save him a walk from the high school building to the grade school building where the cafeteria is located.
Bradley's cardiac function is holding steady. The left ventricular ejection fraction on the echocardiogram was 48%. We are increasing the lisinopril and aldactone dosages to get the optimal therapeutic dose.
