For Immediate Release: April 24, 2013 Contact: Lisa Jones, (618) 697-4194, jonesfamily91@msn.com
LOCAL FAMILY FIGHTS FOR A CAUSE CLOSE TO THEIR HEART AND HOME
Cobden Family Hosts a 5K Walk/Run and Silent Auction to Raise Awareness and Funds for Duchenne muscular dystrophy
Cobden, Illinois – Sixteen year old Bradley Jones is a fighter. And the name of his toughest opponent is Duchenne Muscular Dystrophy (Duchenne). When Bradley was three years old, he was diagnosed with Duchenne, a progressive muscle disorder that causes loss of muscle function and independence. However, with the spirit of any good fighter, he lives life to the fullest, surrounded by the love and support of is family and community.
On June 1, 2013, Bradley’s family and friends will host a 5K and silent auction at the Cobden Community Park to raise awareness of Duchenne, a little known and often misunderstood genetic disorder, and to raise funds on behalf of Parent Project Muscular Dystrophy (PPMD). PPMD is a national nonprofit organization started in 1994 by parents of young men diagnosed with Duchenne. The Jones family is actively involved with PPMD and hopes to inspire the Southern Illinois community to come out, have fun, and make a generous contribution in support of Bradley and PPMD.
“We want everyone to know more about Duchenne muscular dystrophy and how it affects people in our own neighborhoods and communities,” said Lisa Jones. “Our 5K and silent auction is a fun way to raise awareness, however, the purpose of the event is very serious because much more research is needed to fight this disorder.
About Parent Project Muscular Dystrophy
Duchenne is a fatal genetic disorder that slowly robs young men of their muscle strength. Parent Project Muscular Dystrophy’s mission is to end Duchenne.
We invest deeply in treatments for this generation of young men affected by Duchenne and in research that will benefit future generations. We advocate in Washington, DC, and have secured hundreds of millions of dollars in funding. We demand optimal care, and we strengthen, unite, and educate the global Duchenne community.
Everything we do—and everything we have done since our founding in 1994—helps boys with Duchenne live longer, stronger lives. We will not rest until every young man has a treatment to end Duchenne.
Go to www.ParentProjectMD.org to learn how you can support our efforts and help families affected by Duchenne.
Interviews Available
The Jones family, Parent Project Muscular Dystrophy executive staff, and experts on Duchenne muscular dystrophy are available for interviews.
Event listing details:
Who: The Jones family (and any other community partners)
What: Bradley’s Race to End Duchenne
Where: Cobden Community Park on Locust street in Cobden, Illinois
When: June 1, 2013 9:00am to 2:00pm
Why: To raise awareness and money for Duchenne on behalf of PPMD
Additional Info: For more information about the event, please visit www.parentprojectmd.org/bradley
Top Sponsors for the event include Farmers State Bank of Alto Pass and Wade Dover Construction, LLC. ###
